Join The MS Family on You Tube
Send in a description with YouTube name/channel link, age, diagnosis & date, a description of yourself, and your YouTube channel link to:
(Please send YouTube name only, This is at this time a work in progress, eventually will be alphabetized)

  MSVLogSupport, age 46, diagnosed RRMS 9/2005. Nevada, USA.  I was diagnosed in 9/2005 but had symptoms since 1997.  Was on Copaxone for over 3 years, now on Avonex.  Started the MSVlogSupport group so that people could put a face and a voice with others and not feel so alone.  I am housebound most of the time and have made so many friends here on youtube and other networking sites.  I have high hopes for CCSVI and what it could mean for so many of us.  The MS Community has been a great support group for me.
     
  Irishbear76, age 35, diagnosed Multiple Sclerosis, Summer 2003. Indiana USA.    I am 35 years old and I work as a professional in the health science industry.  I am an MS activist and community leader and spend much of my free time giving support to fellow sufferers. I am married (Angela) and I have two daughters Madilynne (8) and Anneleise (1).   
     
  kezzcass, age 34, Australia. diagnosed  MS 19 Aug 2008 (I have had symptoms for over 10 years though)
diagnosed CCSVI - 2 Feb 2010 (stenosis greater than 50% in left jugular, narrowest point 2mm).
 
     
  vbeachy, age 46, Iowa USA. Diagnosed MS at age 34 in Albuquerque, New Mexico when I was training for a marathon.  Was using a wheelchair for four years.  Started Tysabri in November of 2006 (still on monthly IV infusions).  I'm a writer (wrote one memoir and working on finishing the 2nd).

Channel URL: http://www.youtube.com/user/vbeachy
My website MS page: http://vernbeachy.com/MS.htm

 

 
     
  ThePennyGirl, age 52, diagnosed RRMS July 2008, California USA.  My MS symptoms began nearly 15 years ago, Optic Neuritis was the 1st major event in 2008 with complete blindness now legally blind in the left. I have used LDN, Copaxone, Avonex, currently on no medications.
I hope to join the next CCSVI studies if any at Stanford.   
     
  angelusa73, age 37,  diagnosed Active RRMS at age 33 in October 2006, Italy/Connecticut USA.   My name is Angela Sergio Cleary, I am an Italian woman living in the United States and I was diagnosed with Multiple Sclerosis in October 2006.  I was told that I had MS and just 3 days later, I found myself in the hospital with my first relapse.  Since then, I have had many new challenges and made many new steps.  In the first two years of the disease, I had six relapses, I had to change four medications and I had many hospitalizations.  I needed rehabilitation after losing use of the left side of my body twice, I had to take plenty of IV steroids, did plasmapheresis (filtering of the blood) twice and it took me a whole year to go back to walking almost as normal as I did before MS came into my life.  My fourth medication has been Tysabri and since taking it, I have improved a lot and I have been relapse free for a year.  

In September of 2007, while I was going through one of the two relapses that took away my ability to move independently, a very special person inspired me and I created the Flowers4MS project.  Because I have always loved flowers and I was able to meet the woman who inspired me in a botanical garden, I felt that flowers would be the perfect symbol of this disease.  I wanted to use something as beautiful and positive as flowers to overshadow the pain and suffering that this disease. Now, this project has become the Flowers4MS Foundation.
     
  laurenvparrott, age 26, Diagnosed at age 18 in 2002 Michigan, USA.   Started on Copaxone, switched to Beta Seron, then switched to Tysabri in 2007 and I've been taking it since.  I feel great and I work at a local television station
     
  omexmc80, age 29,  Diagnosed RRMS March, 2008, UK & USA. My manger at the bank noticed i was having regular symptoms with numbness, memory loss and pain. This reminded her of her brother who had MS and asked me to go to the docs. I went to go see a Neuro who said I had signs of a central inflammation disease and was booked in for an MRI (kept on missing my MRI appointments as I was in the USA) finally my friend from the USA took me back to the UK so I have the MRI and I got diagnosed with MS. After 18 months of fighting this disease by myself I found the great MS family on youtube who have helped me get beck on my feet.

Now I'm off to Bulgaria to get liberated in June 2010. Where would I be without my MS family?   I love you all..
     
  prissie28, age 30. diagnosed RRMS September, 2006, Oslo, Norway.   I was born in 1980 and live in Norway in Northern Europe. I love writing and singing music, writing poetry, making videos, acting and comedy. I was diagnosed with relapsing remitting type of MS in early September 2006, just a few days after my best friends father died.

MS has taught me about survival, about trying to live in the moment, how to communicate with people, it has taught me about fear, hope and love.  It has taught me more about the meaning of life, and about the good in people.   Everyday is different, some days I feel like a lioness, other days I feel vulnerable, lonely and isolated, like I'm nothing. And since I'm not married and have no children, except from my sweet cat, it's even harder to deal with those feelings, I guess. My creativity is all I have, and through that I try to reach out to you all.

My life as a person with MS has become more meaningful with the help, love and support of all the MS people on Youtube and Facebook. I feel like you understand me, and I understand you.  We are helping each other out by keeping the hope up, working for our rights to get the treatment or medication we deserve, we listen to each other’s stories and thoughts, we entertain each other.. We are a big family. I feel so lucky to have met you all, and I look forward to meet anyone new that wants to be a part of our MS family here on the web.  - Peace and love, Astrid Berit aka Prissie28
     
  Mackierojo,  age 39, diagnosed RRMS March 2008 Toronto Canada.  Attended Hospital ER for which I thought was a sprained ankle Nov 2006 which led to being diagnosed with RRMS March 2008 After receiving 2 MRI's, Cat Scan, Evoked Potential Test,  Denial March 2008 to April 2009, (accepted diagnosis April 2009) 
 
After spending a year in denial and experiencing much anger, employment put on hold June 2009 after relapse. Relationship of 4 years ended June 2009 as well (last words said, Gf to me "I can't handle your MS"). Summer 2009 spent visiting Psychiatrists and Therapists for depression. December 2009 found "You Tube" more specifically Prissie28 video that turned me around. Turned life around and have become a personal advocate for CCSVI to help others battle the fight I endured in 2009 and anything I can do including taking my message worldwide to prevent someone of reaching the level I had of life crashing down at age 38 in June 2009.  I have met Dr. Zamboni in Hamilton ON a few weeks ago and that day has only pushed me even further to spread as much word as I can to our ultimate goal of CCSVI around the world and the breakdown of big pharma corps and giving people back their lives and a certain level of hope and inspiration.
     
  donotconcede, age 46, diagnosed RRMS July 28, 2008,  Maryland, USA  Joined YouTube after seeing videos by Irishbear76, Angelusa73 and MSVlogSupport.  I knew then I had to do something and figure out a way to do a YouTube video too.  I'd found other people just like me and I wanted to talk to them.  I went partially deaf in mostly my right ear, but steroids were administered and my hearing returned.   I have some disability walking and for my "therapy" used Copaxone when Avonex began to damage my liver and made me feel real sick all the time.  I take a variety of vitamins including high doses of vitamin D, and Omega 3.   I am currently also taking an angiotensin receptor blocker, which "might" help MS.

I research on the net all the time and found the CTV video on Chronic Cerebrospinal Venous Insufficiency  (CCSVI) with Dr. Zamboni.   I believe this theory more than the "my immune system is in explicably attacking the myelin around my nerves."  AvaPro helps blood flow more efficiently through the veins.  This has helped my symptoms a lot. my legs are stronger and I sleep through the night  and even dream again!  I hope to get tested for CCSVI, hoping BNAC will choose me.

My website:  www.reallynews.com
     
  Your YouTube Name (with link), age, diagnosed info. whatever you want to say about you.